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WITHIN3 CASE STUDY: RARE DISEASE IN YOUNG ADULTS

Rare Disease in Young AdultsEvolutions in life expectancy represent an opportunity to participate in the patient care continuum beyond the drug therapy aspect. Specifically, to gain understanding and insight related to the full patient experience as they transition from child to young adult. These learnings may result in changes to educational materials, patient engagement initiatives, and further support opportunities related to the physician and patient relationship.

A leading pharmaceutical’s commercial team was purposed with gaining insights on the ramifications of the treatment and expanded life expectancy related to a rare metabolic disease. As a key input to its efforts, the team decided to conduct a meeting with young adult patients, who would have first-hand knowledge and experience related to this subject.


speechBubbles.jpg "The platform was easy to use, and not having to travel to participate was a huge plus!"

- Patient Advisor Participant

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